Market research: T1 Adults on MDI, or Medtronic / OmniPod pumps

We have been asked to help find a few people for market research.

They are looking for:

  • 14 adults (over 18) with Type 1 diabetes currently on a multiple daily injections (3 or more per day)
  • 5 adults (over 18) with Type 1 currently using a Medtronic MiniMed pump
  • 7 adults (over 18) with Type 1 currently using an OmniPod

The interviews will take place on 21st. 22nd and 23rd March in London. They will last 60 minutes and you will be paid £65 as an incentive.

To participate,*** Now closed ***

As always, INPUT will also earn a fee for putting you in touch so please mention INPUT when you email.

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Earn an Amazon voucher for FreeStyle Libre user survey in UK, Germany, France & Sweden

We have been asked to find Libre users in the UK, France, Germany and Sweden to complete a survey. Adults and parents of under 18’s can all take part.

The survey will take around 20 minutes, and you will receive a £15 Amazon voucher for completing it. You will need to provide your email address at the end of the survey in order to receive your voucher.

We are looking for big numbers:

  • 110 UK participants
  • 110 participants in Germany
  • 110 participants in France
  • 50 participants in Sweden

As always, INPUT will also receive a donation for each participant recruited through our social media channels. These ‘finders fees’ help us to keep running, so we are very grateful to anyone who takes part.

To see if you are eligible and take the survey click on the following links:

 

*** Survey closed ***

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DIaMonD study suggests CGM helps those on MDI

Two randomised controlled trials, recently published in the Journal of American Medicine Association (JAMA), suggest that Controlled Glucose Monitoring (CGM) greatly benefits people with type 1 diabetes (T1) who use multiple daily insulin injections (MDI), and not only the minority using insulin pumps.

The DIaMonD (Multiple Daily Injections and Continuous Glucose Monitoring in Diabetes)  and GOLD studies, the first to focus solely on the benefits of CGM for adult T1s who use MDIs, were commissioned by Dexcom, and conducted in the US and Sweden respectively.

While CGM is currently used mostly by T1 patients using an insulin pump, the study results prove the system to be both beneficial and user-friendly to those on MDIs. A minority of T1 patients use an insulin pump in the UK.

Results of both trials show that Dexcom’s CGM improves HbA1c levels more than conventional treatment; the device can be used directly for making diabetes treatment decisions instead of alerting patients to use a blood glucose monitor to determine treatment.

Study findings also reveal that CGM also helps detect hypoglycaemic episodes, resulting in fewer such attacks and their inherent risks.

The Dexcom CGM system was the first produced worldwide to interact with mobile phones, and may be used with both Android and iOS smartphones, with the need for only two finger stick checks daily.

The system is available in the UK to both T1 patients and those with Type 2 diabetes who are insulin dependent.

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WANTED: 6 pump users aged 18+ for market research focus group

INPUT has been contacted by a market research company organising a half-day long focus group of adult (age 18+) insulin pump users. This small focus group will take place in Central London (exact location to be arranged).

Specifically, they want to speak with:

  • Two long-term (10 years+) pump users who have switched makes of pump (this means from one company to another, rather than different pumps from the same company)
  •  Two newish pump users who got their pump in the past 2 years
  •  One OmniPod user who has switched from another make of pump to their current OmniPod

The event will take place from 12-5pm, with lunch provided, on one of the following dates, depending on what’s best for the participants: Tuesday 28th Feb, or Saturday 4th March.

The incentive? Your travel expenses (up to a maximum £50) will be reimbursed, lunch will be provided, and you’ll get to spend the afternoon with a group of other pump users. Crucially, INPUT will receive a donation of up to £1,350 for finding participants. We are very grateful to those who chose to donate an afternoon of their time to help this project and therefore trigger a huge donation to INPUT.

Thank you for your interest – all spaces have now been filled.

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INPUT’s Lesley Jordan in Diabetes Times

The latest edition of Diabetes Times includs an interview with INPUT’s Chief Exec Lesley Jordan. Read the interview here.

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Consultation / care planning tool

Are you fully involved in your care planning? Do you feel there’s more to good diabetes management than a ‘good’ HbA1c?

As part of their comprehensive commissioning pack, the London Diabetes Clinical Network includes a type 1 care consultation tool (developed by Health Innovation Network and King’s Health Partners), which can be used in the management of people with type 1 diabetes.

The Type 1 Diabetes Consultation Tool will help the person with diabetes (PWD) and the consultant to plan individualised care where the patient is fully involved in the process.

The first page is completed by the PWD either before they attend clinic or in the waiting room. It asks the user to note down things such as specific issues they wish to discuss, hypo awareness, confidence in carbohydrate counting, and the burden of diabetes.

Pages 2 and 3 will be completed by the PWD and consultant. Page 2 covers everything that should be in an annual review. Page 3 plots a comprehensive picture of their diabetes control, noting HbA1c along with hypo risk and living with diabetes (or diabetes distress score). There is space for treatment decisions and plans to be noted down. The consultant then takes a copy of the tool, leaving the original with the PWD to take home.

3 point dart board

As we mention in our Better Clinic Appointments page, decisions made in an appointment might be remembered differently by the doctor/nurse and the PWD, so this tool will help solve that problem. It also makes clear that a good HbA1c alone is not the mark of successful diabetes management.

If you think this tool might help your clinic appointments, why not print this page and show your clinic? Experience amongst staff in the London Diabetes Clinical Network shows that whilst it initially takes a little longer for an appointment, it gathers all the data that should be kept anyway, and soon becomes a welcome tool for efficient and high quality care. They suggest a clinic trials the tool with a few PWD before adopting it for every PWD with type 1.

A note of caution: the living with diabetes (or diabetes distress score) section will help clinicians who are not psychologists to spot distress which may have impact on the PWD’s glycaemic control. Many issues can be suitably managed by handling this well in the consultation room. However, if issues are identified which need psychology assessment and support, it would be unfair to uncover these issues and not act on them. The tool is based on research and referenced so that clinicians can make a considered decision on whether or not to adopt it and how to do so safely.

The explanation sheet for PWD can be found here.

The consultation tool is here.

The full commissioning pack is here.

 

 

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Levelling Up: Tackling Variation in Diabetes Care

Yesterday (23rd November 2016) Melissa and Lesley attended the All Party Parliamentary Group for Diabetes reception where the group launched its latest report, “Levelling Up: Tackling Variation in Diabetes Care”.

INPUT's Melissa and Lesley with Jonathan Valabhji

INPUT’s Melissa and Lesley with Prof Jonathan Valabhji

Hosted by APPG for Diabetes chairman Keith Vaz MP, it was also attended by people with diabetes, representatives from JDRF and Diabetes UK, healthcare professionals, MPs, Lords and the National Clinical Director for Obesity & Diabetes Professor Jonathan Valabhji.

Secretary of State for Health, the Rt Hon Jeremy Hunt MP welcomed the report and spoke of the importance the government places on prevention of (type 2) diabetes and accessible structured education for people who have been diagnosed with type 1 or type 2. He also mentioned the need to embrace technology.

The report itself notes the variation across the country in accessing insulin pump therapy, citing local funding issues, staff training and lack of patient education as potential barriers.

It notes the great work done by the South London HIN to improve pump services and uptake. INPUT would be delighted to see other regions running similar service improvement programmes.

The report also notes how difficult it can be for people to access CGM even when they meet NICE criteria.

The report makes several recommendations to local health economies, Health Education England, NHS England and the Department of Health.

Follow this link to the APPG for Diabetes website where you can download the full report and recommendations.

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CGM commissioned in 8 North West London CCGs

Great news! The North West London (NWL) Clinical Commissioning Groups collaboration board has approved a proposal to commission Continuous Glucose Monitoring (CGM) for a defined cohort of adults with type 1 diabetes, in line with NICE NG17.

The NWL collaboration covers:

  1. Brent CCG
  2. Central London CCG
  3. Ealing CCG
  4. Hammersmith & Fulham CCG
  5. Harrow CCG
  6. Hillingdon CCG
  7. Hounslow CCG
  8. West London CCG

CGM funding is now available for patients aged 18+ registered with GPs in those CCGs if they:

  • meet the criteria for CGM set in NICE NG17, and
  • have been recommended to use CGM by their specialist diabetes care team

A spokesperson for NWL CCGs told us: “NWL CCGs are pleased to support the funding of continuous glucose monitoring devices in patients with difficult to control Type I diabetes.
Hypoglycaemic episodes can sometimes lead to potential serious and life threatening consequences, and as such we hope that by providing CGM devices to this subset of people with Type I diabetes we hope to improve patient care. NWL CCGs have worked collaboratively with local consultant diabetologists to develop a policy to determine which patients will benefit the most from a CGM device. Funding is available for North West London patients with Type I diabetes who meet our NWL policy criteria.”

This commissioning decision applies to the use of a CGM system with alarms (it does not cover Abbott FreeStyle Libre). Adults with type 1 diabetes who currently have an Individual Funding Request (IFR) for CGM will be contacted in due course regarding transitional arrangements.

Read the collaborative’s position statement here

To check which CCG your GP is in, find your GP surgery on www.nhs.uk and scroll down to the bottom of the main information page about your surgery.

Has your CCG approved a business case for CGM? Ask your CCG or your clinic. (NHS clinicians could also contact IPN-UK for further information on successful business cases.)

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MHRA warns against accepting trial of new insulin pumps by direct message on social media

Company adverts for new diabetes technology are a good way to find out what’s available and what might be coming. Responding to an advert and asking for information is also good. However, if you are invited by direct message on Facebook or Twitter to test a new pump without being supervised by your clinic, that is not good practice.

MHRA published a warning against changing your ‘insulin delivery device’ (pump) without medical supervision. There’s a good reason for this. Medical devices in the UK have to undergo stringent safety testing, and medical device companies have legal obligations to be able to deal with product issues in a timely manner. This is for our safety.

This is not about wanting a different brand of pump from those offered by your clinic. Any pump available on the NHS (even if not in your area) will have gone through those stringent tests.

If you are considering testing a new pump, please do so under the supervision of your clinic. If you are looking for a different brand of pump from those offered by your clinic, please see this page.

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Wanted: adult Accu-Chek Mobile blood glucose meter users – Bristol & London

A market research company (Acumen) are looking for people aged over 18 who are using an Accu-Chek Mobile blood glucose meter to come along and provide feedback on a brand new blood glucose meter. The session will just take 20 minutes and participants will not be asked to measure their own blood, they will be using the new meter with simulation blood.

They are running the sessions in Bristol on Monday 7th and Tuesday 8th November and  East London 14th-18th November. They have sessions available morning, afternoon and evening and as a thank you for giving up their time and contributing to the research participants will receive £40.

Please mention INPUT when you make contact – if you are selected to participate INPUT will receive a fee for putting you in touch.

If you are interested, please contact *** now closed ***

Don’t forget to mention INPUT!

 

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