Join in the conversation on Facebook: Wales Insulin Pump Users & Wannabes
and like the page of the National Insulin Pump Co-ordinator for Wales
Chris Headland, Wales National Insulin Pump Coordinator / Cydlynydd Cenedlaethol Pympiau Cymru writes:
We are delighted to be working together with INPUT to help improve access to Insulin Pump Therapy in Wales and will work closely together to ensure any issues relating to access to diabetes technology and or issues relating to care/service are raised in the appropriate arenas.
In 2013 Welsh Government produced the Wales Diabetes Delivery Plan. This plan was implemented to ensure people at risk or are affected by diabetes living in Wales are given timely access to high quality health care.
Insulin pumps are amongst the initial priorities identified that needed urgent address in Wales as well as access to high quality foot care, delivering excellence for young people / transition services and diabetes education.
As part of the focus upon insulin pumps in Wales a new National role has been developed – the Wales National Insulin Pump Co-ordinator. The purpose of this role is to improve access to insulin pump therapy, ensure pumps are managed safely by their users and pump users are supported by highly educated and motivated health care professionals through a wide range of activity.
The Wales Delivery Plan was “refreshed” and the update launched in December 2016, it is pleasing to note that insulin pumps remain one of the key priorities of the plan. You can download the plan here.
Accessing Insulin Pump Therapy in Wales
The status of the NICE technology appraisal guidance (TA 151) in Wales is the same as England. Health Boards are under a statutory duty to implement NICE approved technologies such as insulin pumps to those who meet relevant criteria.
NICE guidelines for the use of CGM have been developed and “should be used“ to support patients who require this therapy although currently there is no obligation for Health Boards to provide funding.
All Wales Insulin Pump Health Care Professional Network
At an all Wales level a newly established Insulin Pump Network will be formed whose remit will include setting national standards and guidance to help ensure equity, safety and education levels are developed. The Insulin Pumps Wales HCP Network will also have a resources website and provide training to assist in the embedding of insulin pump services in to routine diabetes care.
All Wales Insulin Pump Patients / ”Pumpers” Network
A Facebook interest group page “Insulin Pumps Wales” has been recently established for those who are considering pump therapy, waiting to commence therapy and or existing “pumpers” living in Wales. This new group facilitates people living with diabetes to get information / resources, news and most importantly peer support from other pump users as a diabetes community in Wales. It is envisaged that a patient website will be launched during 2017. The network will also provide an opportunity for local meet ups of pump users in Wales and also opportunities to help in the development of new and innovative resources and piloting new initiatives. For details please visit the Facebook Page.
Pump Centres in Wales
There are currently 16 secondary care centres in Wales who routinely offer insulin pump services listed below by Health Board location. All centres will have representation on the Insulin Pump Network, are actively engaging with the National Insulin Pump Coordinator and are all keen to develop their services to develop the care they offer to people living with diabetes.
If you are interested in insulin pump therapy you are advised to discuss this with your healthcare team initially so you can find out more about what’s involved, suitability and next steps. (See footnote)
Abertawe & Bro-Morganwg University Health Board
Singleton Hospital, Swansea
Morriston Hospital, Swansea
Princess of Wales Hospital, Bridgend
Aneurin Bevan Health Board
Royal Gwent Hospital, Newport
Nevill Hall Hospital, Abergavenny
Betsi Cadwaladr University Health Board
Ysbyty Gwynedd, Bangor
Ysbyty Glan Clwyd, Rhyl
Wrexham Maelor Hospital , Wrexham
Cwm Taf Health Board
Royal Glamorgan Hospital, Llantrisant
Prince Charles Hospital, Merthyr Tydfil
Cardiff and Vale University Health Board
University Hospital of Wales, Cardiff
University Hospital of Wales, Llandough.
Hywel Dda University Health Board
Bronglais Hospital, Aberystwyth
Glangwili General Hospital, Carmarthen
Withybush Hospital , Haverfordwest.
Prince Philip Hospital, Llanelli
Powys Teaching Health Board
Powys Health Board is unique as there are currently no acute hospital sites located within its boundaries. Insulin pump patients (as with many other diabetes patients) access services across the borders of the health board both here in Wales and England with agreements in place.
Get in touch: –
If you experience any issues with relation to pumps/pump therapy in Wales please contact INPUT who work closely with the National Insulin Pump Coordinator in Wales . Alternatively, you can visit our Wales insulin Pumps Facebook page and message us directly.
If you wish to contact the Wales National Insulin Pump Coordinator you can do so on firstname.lastname@example.org .
Footnote – if your clinic tells you that you don’t meet the pump criteria but you think you do, please contact INPUT via the “Contact Us” button at the top of the page.